Pelotonia – 10 Years and Counting

I still remember when we first heard of
his diagnosis because it was like, oh my gosh again. – That day just sticks out in
my mind it’s like ‘oh my God, like, this is actually happening?” – It was a rush of
emotions, you never imagined hearing the words “you have cancer.”
It changes you it changes your life, you think your life is over and
immediately you think you’re gonna be dead the next day. – You don’t think about
leaving, I look back at those things that we won’t be able to share together like
I won’t be able to have her at my wedding I won’t be able to have her
there to meet my children, my wife. I signed up for Pelotonia the day that
I started my radioactive iodine treatment. – It was pretty emotional when
you saw the people you thought, ‘they’re all there for me.’ My first year that I
participated in Pelotonia was from the sidelines, friends of mine from Huntington actually rode for me. Well good morning everyone I wanted to
welcome you to the James, my name is Katie Keaney and I have the pleasure of
managing the volunteer program here at the hospital. I also just wanted to wish
each of you who are riding this weekend a safe, fun, and inspirational ride. Hope
that you know how much you’re doing, you know, to support what we do here on a day to day basis. And now we’ll begin our tour! – We toured my experience at some
level, the day behind the scenes at the James was incredible for me, I had no
idea how far we’ve come in four years since I was diagnosed. – (whispering)This is new, this is really cool that they’re taking you here!) – We’re on the 18th
floor and we’re going to the new digital pathology space. So how this works is we
take these racks of glass slides from patients, within minutes I can have the
patient’s material scanned and available to me for your patients anywhere in the
world. You can go to a website login and send cases to us at OSU so so it’s going
to be a game changer in pathology diagnosis. – They’re working with countries
all around the world, they can literally diagnose, consult on their patients. There’s lots of methods – I think to myself wow, that’s that’s amazing. – That was fascinating, my assumption is they have my information in there
somewhere. – What it’s gonna do with the image, I can
run an algorithm using machine learning and artificial intelligence and ask the
computer to find similar cancers, just like you search on Google for the best
restaurant or the best pizza I can put this image in Google and ask for it to
search for similar images which have been diagnosed by experts. This is, this
is cool because this makes pathology more objective. So OSU will be at the cornerstone of
this technology, but this has been head started based on the funding from
Pelotonia you know without that initial money and support we wouldn’t have
launched this project. – That’s amazing with the different slides and they’re able to
put that up and immediately diagnose in ways with, you know, using computers and
big data and learning and stuff and that wouldn’t have happened but for Pelotonia.
I thought that was really impressive that our contribution was directly
affecting that type of work. – I really appreciate all your support from
Huntington and for Pelotonia, thank you. -So our lab does a lot of work with precision cancer
medicine, before it was kind of like to classify cancer by where it is in your
body, right, that’s how you treated the cancer, if you had lung cancer you got
one therapy, if you had leukemia you got another therapy but that paradigm is
kind of shifting now more towards a genetic classification of cancer so a
patient that has breast cancer and lung cancer with the same genetic alteration
could get the same kind of therapy I – I feel like the FDA categorizes things by
what kidney cancer is vs. lung. – They do. That’s actually changing now too so there was a recent study for an
immunotherapy and it was the first time the FDA had ever approved a drug based
on a biomarker not a disease site so that’s exciting, right, and so now any
patient that has this biomarker it was just approved by the FDA for them to
receive this immunotherapy. I think the most interesting thing I
heard that day relative to my situation is the advancements that are happening
around less on the chemotherapy more on the immunotherapy. – So what does that
immunotherapy look like? A lot of times immunotherapy you know patients
have a good response and a prolonged durable response when it works it really
works. – I think there’s a huge advantage to immunotherapy because it does less
damage to the body, chemo was all the side effects from sensitivity to cold, I
couldn’t swallow she could be optical there was just large genetic there’s
really depressed I mean it’s just not a good thing you can tell it’s poison you
can feel it it’s difficult enough to be fighting and have additional things
happen to your body through that fight swimming no I had no restrictions give
me the therapy said he was out riding his bike how great is that yeah it’s
amazing it was a it was a game-changer that day I learned a ton about it and it
gave me so much hope welcome to the clinical treatment unit
we are extremely fortunate at the James to have a Phase one clinical trials unit
how many trials do you usually have going on at one time is it just a couple
or can you have like dozens so we have over 80 open and active fasal and
clinical trials right now so we’re very very fortunate we have a very good
reputation because of the level of detail that we put into doing clinical
trials so the researchers that we have here are our expert they’re
world-renowned and they do draw you know they draw patients from all over the
world the patients and families here are incredibly giving up their time they
invest an incredible amount of time and energy when they come through our doors
and they truly spend in an entire day’s multiple days a week sometimes getting
care here in this unit with the hopes that this will work for their cancer yeah the fact that they they feel at
home when they’re here and they’re not at
home it’s a hard journey so she almost didn’t get the words though thanks for
everything yeah absolutely it’s uh we have a good
staff we have a a really good building everybody here that you run across they
want to be here it’s not just a job they’re here because they’re invested
and they care and they want to make a difference so
it’s an honor to be part of the team I know I think that spoke volumes she
touched me I was thoroughly impressed with how much compassion she has for the
people that she serves I think her passion moves so many of
them said that emotion that she expressed I mean you know that that’s
within many of the staff that work there it’s it’s a good it’s a good place it’s
a good culture I hope that those of you who have been here have had a good
experience the research of course is critical but the people impact your
mental state when you’re fighting the battle it makes you want to fight more
it does to have people as caring as the people that work there on I mean I think
it makes all the difference you gotta angels work it comes through
that everybody here cares yeah really does these funds and these clinical
trials and what the James is doing is saving lives immediately not just saving
lives but extending lives being able to see the impact that the researchers are
doing I don’t doubt that the James is integral and in finding that that care
I’m living proof of the treatment and care that’s necessary to combat this
disease I’m just so grateful a lot of people think they’re there giving funds
to try to create something that will save lives but they’re really doing it
I think I’m remiss not to tell my story not to make sure people understand what
the James is and what every dollar we raise is for I mean they saved my life
you don’t know who you’re gonna help it’s for you know for the moms and dads
and kids that are going through you know instead of sitting in a hospital bed
they can be flying a kite or you know riding a bike ride for fun swimming in a
pool is it literally doing in Fitness the goal that were ultimately going for
is so that we don’t have to do this anymore
it sounds like a lofty goal one goal and cancer lofty goal but what I saw behind
the scenes on our trip to the James I do believe it’s possible it’s something
that are all plan to do until the day that they say hey we’re done you know
and we can hang up our bikes and and just ride for fun I like that word the
words the victory ride this is it when we did this was the year we did it I
never thought I would ever my lifetime have a chance to see it but now I don’t
think that way yeah I think that’s the right mindset they have to think that
this could be that year we are truly making progress and palitana is making a
huge impact so the idea of seeing that day when we
can truly say we’ve completed our goal that’s just that will be an amazing day
that will be an amazing day she’s doing 100 next year I um that’s what I’m
hoping to do

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